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References and

International organisations

European institutions

Civil society organisations

World Health Organisation

European Partnership of Action Against Cancer

European Commission Iniciative on Breast Cancer

Cancer Control Joint Action

Association of European Cancer Leagues

Cancer Caring Coping


European Association for Palliative Care

European Cancer

American Psychological Association

“Overcoming depression. How psychologists can help with depressive disorders.” 2016.


Bouget, D. Spasova S. and Vanhercke, B.

Work-life balance measures for persons of working age with dependent relatives in Europe. A study of national policies. Brussels: European Commission, 2016.


Caswell G, Hardy B, Ewing G, et al

“Supporting family carers in home-based end-of-life care: using participatory action research to develop a training programme for support workers and volunteers.”

BMJ Supportive & Palliative Care August 2017.


Coles A., Cartmell R.

“Informed choice in cancer pain: empowering the patient.” British Journal of Community Nursing 27 9 2013.

ECPC, Eurocarers.

White Paper on Cancer Carers. Brussels: ECPC, 2017.


Europa Donna

Europe’s breast cancer advocacy organisation. “” n.d.


“European Commission Initiative on Breast Cancer. European Quality Assurance Scheme for Breast Cancer Services Scope.”

2016. Available here


Expert Group on Metastatic Breast Cancer.

Policy Roadmap on Addressing Metastatic Breast Cancer. Brussels, 2017.


Kielstra, P.

“The road to a better normal: Breast cancer patients and survivors in the EU workforce.” 2017.


Luengo-Fernandez R., Leal J., Gray A., Sullivan R.

“Economic burden of cancer across the European Union: a population-based cost analysis.” The Lancet- Oncology 14 October 2013.

Manneh-Vangramberen M., Muscaritoli A.,Molfino F. ,Scala F., De Lorenzo K., Christoforidi I.

“European survey of 907 people with cancer about the importance of nutrition.” Annals of Oncology, Volume 28, Issue suppl_5 1 September 2017.



Global Status of mBC – Decade Report. 2015-2016.


Schubart JR., Jane R., Kinzie M.B., and Farace E.

“Caring for the Brain Tumor Patient: Family Caregiver Burden and Unmet Needs.” Neuro-Oncology January 2018.


Stewart BW, Wild CP, editors.

World Cancer Report. Lyon: International Agency for Research on Cancer, 2014.

Tit, A., R. Kiasuma and M. Van den Bulcke.

European Guide on Quality Improvement in Comprehensive Cancer Control – Chapter 7: Survivorship and rehabilitation. 2017.



WHO/Programme/Cancer n.d.


WHO, International Agency for Research on Cancer.

Cancer Today.” n.d.


YouGov and Macmillan Cancer Support.

Estimating the population of cancer carers in the UK. London: YouGov, 2016.


This publication has been developed by Eurocarers, in cooperation with the European Cancer Patient Coalition, and the European Association for Palliative Care.

Some of this content is based on information provided by Macmillan Cancer Support.
Contact: Claire Champeix

Eurocarers wish to thank for their contribution to this project: Charlotte Argyle (Macmillan Cancer Support); Alex Filicevas (ECPC); Pf. Elizabeth Hanson (Eurocarers); Petra Hoogendoorn; Julie Ling, Irene Murphy and Man-Britt Guldin (EAPC); Alison Penny (National Bereavement Alliance, UK); and the members of Eurocarers’ Research Working Group.

We also thank very warmly the informal carers of a person affected by cancer who kindly accepted to share their experience.

Eurocarers gratefully acknowledges the support of Merck, and Pfizer in producing this toolkit. The scope and the content of this toolkit are the sole responsibility of Eurocarers.

European Association working with carers
3, rue Abbé Cuypers,
1040 Brussels
Brussels, 2018.

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